• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

From: U.S. Food & Drug Administration (FDA) [mailto:fda@service.govdelivery.com
Sent: Friday, July 07, 2017 12:34 PM
To: Furia-Helms, Andrea
Subject: FDA approves new drug to treat sickle cell disease- Drug Information Update

 

FDA Logo, hands holding pills

 

The Division of Drug Information (DDI)- serving the public by providing information on human drug products and drug product regulation by FDA.


The U.S. Food and Drug Administration today approved Endari (L-glutamine oral powder) for patients age five years and older with sickle cell disease to reduce severe complications associated with the blood disorder.

Sickle cell disease is an inherited blood disorder in which the red blood cells are abnormally shaped (in a crescent, or "sickle," shape). This restricts the flow in blood vessels and limits oxygen delivery to the body’s tissues, leading to severe pain and organ damage. According to the National Institutes of Health, approximately 100,000 people in the United States have sickle cell disease. The disease occurs most often in African-Americans, Latinos and other minority groups. The average life expectancy for patients with sickle cell disease in the United States is approximately 40 to 60 years.

Common side effects of Endari include constipation, nausea, headache, abdominal pain, cough, pain in the extremities, back pain and chest pain.

For more information, please visit: Endari


This is an automated message delivery system.  Replying to this message will not reach DDI staff.  If you have comments or questions, please contact us at: 1-888-INFO FDA (1-888-463-6332) or (301) 796-3400 from 8:00 am - 4:30 pm ET Monday - Friday.  You can also email us at druginfo@fda.hhs.gov.

 

 

 

 

 

 

 

Events

National Heart Lung and Blood Institute (NHLBI) Clinical Research Meeting - Bethesda, MD - August 2017

4th Annual SCDAA Walk with the Stars - August 26, 2017 - Baltimore, MD - www.sicklecellnationalwalk.org

Duke School of Nursing Sickle Cell Disease Conference - Duke University - Durham, NC - October 6-7, 2017

Sickle Cell Disease Association of America (SCDAA) National Convention - Atlanta, Ga. - October 26 -28, 2017

11th Annual Sickle Cell in Focus - Kingston, Jamaica - October 26-27, 2017

3rd Annual Sickle Cell Symposium - Carolinas Healthcare System - Concord, NC - October 28, 2017

American Society of Hematology - 59th Annual Meeting - Atlanta, Ga. - December 9 -12, 2017

 

 

 

 

 

 

 

 

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  • NEXT SCAPN MEETING

    National Heart Lung & Blood Institute (NHLBI)

    Sickle Cell Disease Clinical Research Meeting

    August 14 - 16, 2017

    SCAPN Symposium on August 15, 2017

    Reception and Board meeting to be held August 15, 2017 at the Doubletree by Hilton Bethesda Hotel - 8120 Wisconsin, Bethesda, MD - 5:30p.m.

     

     

     

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are now a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

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    Click here to become a member and stay informed of all the upcoming news and events.   SCAPN is a 501(c)3 and all donations are tax deductible.