• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

Step toward gene therapy for sickle cell disease

 

A team of researchers at the Stanford University School of Medicine has used a gene-editing tool known as CRISPR to repair the gene that causes sickle cell disease in human stem cells, which they say is a key step toward developing a gene therapy for the disorder.

https://www.sciencedaily.com/releases/2016/11/161108112133.htm
 

  1. Daniel P. Dever, Rasmus O. Bak, Andreas Reinisch, Joab Camarena, Gabriel Washington, Carmencita E. Nicolas, Mara Pavel-Dinu, Nivi Saxena, Alec B. Wilkens, Sruthi Mantri, Nobuko Uchida, Ayal Hendel, Anupama Narla, Ravindra Majeti, Kenneth I. Weinberg, Matthew H. Porteus. CRISPR/Cas9 β-globin gene targeting in human haematopoietic stem cells. Nature, 2016; DOI: 10.1038/nature20134

 

Events

58th ASH Annual Meeting & Exposition

The premier event in malignant and non-malignant hematology

December 3-6, 2016

San Diego, CA

 

Social Events

Welcome Reception

Saturday, December 3, 5:30 p.m. – 7:30 p.m.
All meeting attendees are invited to attend this kick-off event. Enjoy a relaxing evening with your friends and colleagues. Complimentary hors d’oeuvres and drinks will be served. This event will take place in the Poster Hall (Hall G).

Poster Hall Receptions

Sunday, December 4, 6:00 p.m. – 8:00 p.m.
Monday, December 6, 6:00 p.m. – 8:00 p.m.

 

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  • NEXT SCAPN MEETING

    American Society of Hematology

    Monday, December 5, 2016

    Manchester Hyatt America's Cup A

    Time: 8:00p - 10:00p

    DISCUSSION

    2017 Adult Provider Educational Symposium

    Collaboration with ASH

    Next round of HRSA SCD Treatment Demonstration Program

    Election of new Board Members and Officers

     

     

     

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

    • Feedback on the web site
    • Joining SCAPN
    • Donations
    • Meeting Details
    • Blog
  • JOIN OUR EMAIL LIST

    Click here to become a member and stay informed of all the upcoming news and events.   SCAPN is a 501(c)3 and all donations are tax deductible.