• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

 

The American Society of Hematology Wants to Hear from You!

Hydroxyurea Patient Resource

Product Testing

The American Society of Hematology (ASH), a professional society representing both clinicians and scientists around the world who are working to conquer blood diseases, is undertaking a multifaceted initiative to address the global burden of sickle cell disease (SCD). As part of this initiative, ASH is developing a resource to ensure that patients can make informed decisions about hydroxyurea. We would like to get your feedback on what you think about the design and content. We would like to hear from you if:

  • • You have sickle cell disease
  • • You have sickle cell disease and have never taken hydroxyurea
  • • You have sickle cell disease and you take hydroxyurea
  • • You have sickle cell disease and have stopped taking hydroxyurea
  • • You fit any of the above criteria and are at least 18 years old

Your feedback on the draft resource will help us create a great final product that will truly benefit those living with SCD!

Please contact Karina Ngaiza, ASH’s Sickle Cell Disease Policy & Programs Coordinator, at kngaiza@hematology.org if you would like to participate. Use subject: Hydroxyurea Patient Resource Product Testing

Visit www.hematology.org/scd to learn more about ASH’s SCD initiative.

 

 

Events

June 15 - 17, 2018 --12th Annual Sickle Cell Disease Research & Educational Symposium in Washington, D.C.

Symposium Keynopte Speaker: Dr. Solomon Ofori-Acquah

Scientific Keynote Speaker: Dr. Philippe Leboulch

Foundation for Sickle Cell Disease Research

 

September 6 -8, 2018 - 10th Annual Sickle Cell Disease Educational Seminar

Integrative Medicine and Sickle Cell Disease: A Multi-Disciplinary 21st Century Approach

Keynote Speakers: Cage Johnson, MD and Elliott Vichinsky, MD

UC Davis Medical Center, Sacramento, CA

Contact: cassie@cayennewellness.org or www.cayennewellness.org to register

 

September 7-8, 2018  -  Duke School of Nursing Sickle Cell Disease Symposium

Duke School of Nursing

Details to follow

 

October 10 - 13, 2018 - 46th Annual National Convention

Sickle Cell Disease Association of America (SCDAA)

"Celebrating Diversity Within the Sickle Cell Community: Commitment, Innovation, Practice

Baltimore, Maryland

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  • NEXT SCAPN MEETING

    The Annual SCAPN symposium will be held at the 2018 Annual Sickle Cell Disease Clinical Reseach Meeting in Bethesda, MD.  Details to follow.

     

     

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are now a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

    • Feedback on the web site
    • Joining SCAPN
    • Donations
    • Meeting Details
    • Blog
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    Click here to become a member and stay informed of all the upcoming news and events.   SCAPN is a 501(c)3 and all donations are tax deductible.