• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

Pfizer is pleased to announce the 2016 ASPIRE US Sickle Cell Disease Competitive Research Awards Program

As competition increases for limited research funding, the ASPIRE Sickle Cell Disease program offers a new opportunity for researchers in the United States and underscores Pfizer’s commitment to supporting investigators with an interest in advancing innovation in Sickle Cell Disease.

Mission

  • To support basic science, translational and clinical research through a competitive grants program that advances medical knowledge in the pathogenesis and treatment of Sickle Cell Disease.
  • To support innovative pilot studies focused on improving patient outcomes in Sickle Cell Disease.
  • To support academic research as well as the career development of promising young and established scientists.

Areas of Research Focus

Pfizer will consider applications for research projects which address laboratory investigation or clinical research in Sickle Cell Disease. Examples of research topics are listed for guidance; however, other applications will be considered.

Innovative research may be in any of the following areas:

  • Biomarkers of Sickle Cell Disease
  • Phenotypic differences in clinical course and/or response to therapy
  • Clinical trial endpoint validation
  • Patient Reported Outcomes (PRO), Health Related Quality of Life (HRQOL)
  • Improving care of specific complications of Sickle Cell Disease
  • Improving clinical care delivery models
  • Improving acute pain management

Available Awards

The 2016 US Sickle Cell Disease ASPIRE Program is open to US investigators.  Review of applications will be performed by an independent, external panel of experts.  Project duration should be 1 or 2 years, and the approximate total award will be up to $55,000 maximum, inclusive of overhead costs (capped at 28%). 

Applications must be received by Monday, October 17, 2016, 11:59 PM Eastern Daylight Time.

 

 

Events

Sickle Cell Disease Association of America (SCDAA) 44th Annual Convention

September 28 - October 1, 2016 - Baltimore, Maryland

The SCDAA Annual Convention is a four-day conference designed to address the multi-factorial aspects of Sickle Cell Disease. This year the event will be held in Baltimore, Maryland, home of the SCDAA National Office!

In an effort to advocate for improved quality of life for individuals and families affected with Sickle Cell Disease and its associated morbidity and mortality, the conference fosters the exchange of the latest scientific and clinical information related to the disease. This is done through the offering of innovative symposia, training seminars and interactive panel discussions. In addition, this year’s convention offers an array of exciting activities designed to educate and motivate the entire community to get involved in the fight against Sickle Cell Disease.

Target Audience: Physicians. Researchers, nurse community health workers will also benefit from this educational offering.

Broad Objectives: 

The Participants will be able to:

  1. Demonstrate in an effective manner procedures for addressing pain crisis in various settings
  2. Utilize evidence-based guidelines and best practices in their daily care of self and patients to improve patient outcomes and quality of life.
  3. Identify alternate treatment options for the care of themselves and patients.
  4. Use clinical trial websites to access information regarding participation in various available clinical trials.
  5. Decrease the amount of fragmentation in care from adolescent to adult providers.
  6. Recognize, identify or assist in the development of social and emotional resources for patients and families.

Credit: This activity has been planned and implemented in accordance with the Essential Areas and Policies of the Medical Society of Virginia through the joint providership of Carilion Clinic’s CME Program and Sickle Cell Disease Association of America. Carilion Clinic’s CME Program is accredited by The Medical Society of Virginia to provide continuing medical education for physicians. Carilion Clinic’s CME program designates this live activity for maximum 10.5 AMA PRA Category 1 Credits. Physicians should claim only the credits commensurate with the extent of their participation in the activity.

 

FOR MORE INFORMATION GO TO: www.sicklecelldisease.org

 

 

 

 

 

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