Research and Resources for Collaboration
Network with Adult Sickle Cell Providers
Patient Care Resources
Education on Clinical Management and Research Opportunities
The Sickle Cell Adult Provider Network (SCAPN)
The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease. This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.
PHENX MEASURES FOR SICKLE CELL DISEASE RESEARCH
The PhenX (consensus measures for Phenotypes and eXposures) Toolkit (www.phenxtoolkit.org) provides investigators with access to well established, low burden, standard measures to incorporate into new or existing biomedical studies involving human subjects. The goal of the Toolkit is to encourage use of common measures to help researchers effectively collaborate and share data.
The PhenX Sickle Cell Disease Research and Scientific Panel (SRSP) is requesting feedback on measures being condisered for inclusion in the Sickle Cell Disease (SCD) Core Collection in the PhenX Toolkit.
Co-Chairs Dr. James Eckman or Dr. Kathryn Hassell thank you for your feedback.
NHLBI Annual Sickle Cell Disease Clinical Research Meetings
August 19-20, 2015
Location: Natcher Conference Center (Building 45)
National Institutes of Health
45 Center Drive
Bethesda, MD 20892
This year the Sickle Cell Adult Provider Network will hold its annual symposium on August18, 2015 prior to the clinical research meetings.
There may also be sessions for the Sickle Cell Pain Interest Group and others.
UPDATE YOUR PROFILE
Please take a moment to update your Profile
Having Technical Issues?
If you encounter problems trying to log in to the website, please email us at firstname.lastname@example.org and let us know. We're here to help!
Next SCAPN Meeting
NHLBI Clinical Trials Meeting
August 18, 2015
Welcome to SCAPN.net
We are excited to launch our new website! A big thank you to the Doris Duke Foundation. We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults! We welcome you to visit the site and become interactive with us.
- Feedback on the web site
- Joining SCAPN
- Meeting Details
JOIN OUR EMAIL LIST
Click here to stay informed of all the upcoming news and events as SCAPN forms our 501(c)3.