• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

INSIGHTS Study on Sickle Cell Disease and Leg Ulcers at NIH.

 

The objective of the study is to: (1) utilize advanced next generation sequencing technologies to characterize the skin microbiome in sickle cell disease (SCD) patients living with and without leg ulcers and (2) employ social science approaches to identify psychosocial and physical environmental indicators that influence leg ulcer formation and SCD. This study will consist of two to three visits to the NIH in Bethesda, Maryland and travel and lodging will be provided.  Additionally, individuals with leg ulcers will also undergo wound care treatment during each visit. The information gleaned from this study will help guide treatment and interventions for those living with this SCD complication. All study participants will receive compensation for full participation in the study.

 

Eligibility: Individuals ≥ 18 years of age who have sickle cell disease or another red cell disorder and who may or may not have an active leg ulcer. Individuals with multiple leg ulcers are also encouraged to participate in the study.

For more information on the 
INSIGHTS Study, 
please feel free to contact us at: 
301-451-3997 or SCDLegUlcerStudy@mail.nih.gov

Contact information:
Keisha Findley, Ph.D.
findleykm@mail.nih.gov
(301) 443-1272

 

 

Caterina Minniti, M.D.
Sickle Cell Vascular Disease Section
National Heart, Lung, and Blood Institute
Hematology  Branch
Building 10CRC Room 5-5140
Bethesda MD 20892
Phone: 301-435-2345
Blackberry: 301-592-7517
E-mail: minnitic@nhlbi.nih.gov

 

 

 

Events

NHLBI Annual Sickle Cell Disease Clinical Research Meetings

September 19-20, 2015

Location: Natcher Conference Center (Building 45)

National Institutes of Health

45 Center Drive

Bethesda, MD 20892

This year the Sickle Cell Adult Provider Network will hold its annual symposium on September 18, 2015 prior to the clinical research meetings.

There may also be sessions for the Sickle Cell Pain Interest Group and others.

 

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  • Next SCAPN Meeting

    NHLBI Clinical Trials Meeting

    August 18, 2015

    Bethesda, Maryland

    Details coming

     

     

     

     

     

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

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