• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

SICKLE CELL DISEASE FORUM

ENGAGING THE COMMUNITY: DEVELOPING SOLUTIONS

June 25, 2015 to June 26, 2015

 
The National Heart, Lung, and Blood Institute (NHLBI) will host a Sickle Cell Disease Forum on June 25-26, 2015 at the National Institutes of Health (NIH) campus in Bethesda, MD.  The Forum is designed to bring together the sickle cell disease community—including patients and their families, advocates, health care professionals, researchers, community and professional organizations, policymakers, government agencies, industry, and the media—to help chart the future of sickle cell disease research.
 
Engaging panel sessions and discussions will focus on issues affecting those living with sickle cell disease, as well the potential role of various stakeholders in addressing these issues, including:
 
•Sickle Cell Disease Research: Past, Present, and Future
•Managing Sickle Cell Disease Pain
•Innovative Care Models
•Sickle Cell Disease Transitions
•Importance of Clinical Trails
 
Breakout sessions will discuss additional topics;
 
Forum participants can attend in person or stream the Forum live via webcast and participate in the discussion by asking questions and sharing their thoughts directly via social media. Mark your calendar now and don’t forget to tell your networks about the event!
 
Copied from www.nhlbi.nih.gov
 
 
 

 

 

Events

NHLBI Annual Sickle Cell Disease Clinical Research Meetings

August 19-20, 2015

Location: Natcher Conference Center (Building 45)

National Institutes of Health

45 Center Drive

Bethesda, MD 20892

This year the Sickle Cell Adult Provider Network will hold its annual symposium on August18, 2015 prior to the clinical research meetings.

There may also be sessions for the Sickle Cell Pain Interest Group and others.

 

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  • Next SCAPN Meeting

    NHLBI Clinical Trials Meeting

    August 18, 2015

    Bethesda, Maryland

    Details coming

     

     

     

     

     

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

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    Click here to stay informed of all the upcoming news and events as SCAPN forms our 501(c)3.