• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.




The PhenX (consensus measures for Phenotypes and eXposures) Toolkit (www.phenxtoolkit.org) provides investigators with access to well established, low burden, standard measures to incorporate into new or existing biomedical studies involving human subjects.  The goal of the Toolkit is to encourage use of common measures to help researchers effectively collaborate and share data.

The PhenX Sickle Cell Disease Research and Scientific Panel (SRSP) is requesting feedback on measures being condisered for inclusion in the Sickle Cell Disease (SCD) Core Collection in the PhenX Toolkit.  

Co-Chairs Dr. James Eckman or Dr. Kathryn Hassell thank you for your feedback.


NHLBI Annual Sickle Cell Disease Clinical Research Meetings

August 19-20, 2015

Location: Natcher Conference Center (Building 45)

National Institutes of Health

45 Center Drive

Bethesda, MD 20892

This year the Sickle Cell Adult Provider Network will hold its annual symposium on August18, 2015 prior to the clinical research meetings.

There may also be sessions for the Sickle Cell Pain Interest Group and others.



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  • Next SCAPN Meeting

    NHLBI Clinical Trials Meeting

    August 18, 2015

    Bethesda, Maryland

    Details coming







  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

    • Feedback on the web site
    • Joining SCAPN
    • Donations
    • Meeting Details
    • Blog

    Click here to stay informed of all the upcoming news and events as SCAPN forms our 501(c)3.