• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

PHENX  MEASURES FOR SICKLE CELL DISEASE RESEARCH

 

The PhenX (consensus measures for Phenotypes and eXposures) Toolkit (www.phenxtoolkit.org) provides investigators with access to well established, low burden, standard measures to incorporate into new or existing biomedical studies involving human subjects.  The goal of the Toolkit is to encourage use of common measures to help researchers effectively collaborate and share data.

The PhenX Sickle Cell Disease Research and Scientific Panel (SRSP) is requesting feedback on measures being condisered for inclusion in the Sickle Cell Disease (SCD) Core Collection in the PhenX Toolkit.  

Co-Chairs Dr. James Eckman or Dr. Kathryn Hassell thank you for your feedback.

Events

September is National Sickle Cell Disease Awareness Month.  Join a walk, make a donation to a community program or comprehensive center program in your respective area.

Announcement

1st Annual Sickle Cell Disease Symposium: A Comprehensive Approach to Managing Sickle Cell Disease will be held in Charlotte, NC on October 24, 2015.

Time: 8:00a - 3:30p EST

Place: Carolinas Healthcare System - North East - Hamrick Theater - 920 Church Street North - Concord, NC 28025

 

AGENDA

Overview of Sickle Cell Disease: Myths and Truths - James Eckman, MD

Common Therapies for Sickle Cell Disease - Julie Kanter, MD

Pulmonary Complications of Sickle Cell Disease - Johnson Haynes, MD

ED Management of Sickle Cell Disease - Paula Tanabe, PhD

Developing Comprehensive Care Plans for Sickle Cell Disease - Ify Osunkwo, MD

Acute & Chronic Pain Management - Wally Smith, MD

Psychosocial Challenges in Managing Young Adults with Sickle Cell Disease - Nirmish Ramesh Shah, MD

An interactive Patent Panel will conclude the symposium

To register go to;  www.charlotteahec.org or contact Amanda  Rogers at (704) 512-6038 for more information.

The Carolinas Healthcare System/Charlotte AHEC designates this Live Activity for a maximum of 6.0 AMA PRA Category 1 Credit(s)™.

Physicians should claim only the credit commensurent with the extend of their participation in the activity.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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  • Next SCAPN Meeting

    Sickle Cell Disease Association of America (SCDAA)

    SCDAA 43rd Annual Convention

    September 23, 2015  - 3:00p

    Hilton Inner Harbor Hotel

    Baltimore, MD

    Room location TBD

     

     

     

     

     

     

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

    • Feedback on the web site
    • Joining SCAPN
    • Donations
    • Meeting Details
    • Blog
  • JOIN OUR EMAIL LIST

    Click here to stay informed of all the upcoming news and events as SCAPN forms our 501(c)3.