• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.

News

2016 Annual Sickle Cell disease Clinical Reseach Meetings

 

 

Date - August 15 - 17, 2016

Where - NIH Clinical Center - Building 10

9000 Rockville Pike, Bethesda, MD 20892

AGENDA

Monday
August 15, 2016

7:00 am – 5:00 pm. Registration.

8:00 am - 4:00 pm. Symposium: Stem Cell Transplantation in Sickle Cell Disease. Dr. Lakshmanan Krishnamurti.

9:30 am - 3:00 pm (open to public). SCDTDP Leveraging 10 years of Measurement & Data. 

Dr. Donnell Ivy.

 

3:00 pm – 5:00 pm (closed to public).


Tuesday,
August 16, 2016   

7:00 am – 5:00 pm. Registration.

8:30 am – 5:00 pm. Data Science Symposium in Sickle Cell Research & Health Services. Dr. Ellen Werner.

  • Presentations
  • Special Presentation - The NHLBI Undergraduate SCD Challenge
  • Dr. Helena Mishoe
  • Presentations by Student Champions
  • Drs. Helena Mishoe & Chitra Krishnamurti
  • Discussions and Recommendations

SCAPN WELCOME RECEPTION

DoubleTree Hotel

8120 Wisconsin

Bethesda, MD 

Tuesday - August 16th from 6:30p - 8:30p

_____________________________________

Wednesday
August 17, 2016

7:00 am – 5:00 pm. Registration.

8:00 am – 1:00 pm. Sickle Cell Adult Care Provider Network Symposium:  Transfusion Medicine & Sickle Cell Disease. Drs. Ify Osunkwo; Julie Kanter & Lakshmanan Krishnamurti.

8:00 am – 4:00 pm. BMT CTN Stride Investigators & Coordinators Meeting. Dr. Lakshmanan Krishnamurti.

 

 

Events

Hi, I am recruiting sites to participate in a large multi-center RCT comparing individualized vs. weight based dosing for the treatment of VOE, preferably in the ED, but also open to Day hospital sites. The grant is being submitted to NHLBI for the October deadline. We completed a successful pilot at Mt Sinai and University of Cincinnati as an R34. Sites must be willing to:

  1. Have good cooperation between the ED and hematologist/SCD expert
  2. SCD expert must be willing to randomize their patients to weight based or individual protocols
  3. Patients are enrolled for future ED visits, should they occur
  4. All data collection is in the ED (or DH) during a VOE for a max of 6 hours, or discharge home, or decision to admit to hospital

Those are the basics, please let me know if you have interest. Thanks, Paula

 

Paula Tanabe, PhD, RN, FAEN, FAAN

Associate Professor of Nursing and Medicine

Duke University

307 Trent Drive, MC 3322

Durham, NC 27710

B: 919-613-6038

C: 312-502-0185

EM: paula.tanabe@duke.edu

 

 

 

 

 

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  • NEXT SCAPN MEETING

    The SCAPN Symposium will be held August 17th at the Annual NHLBI Sickle Cell Disease Clinical Research Meetings

    NIH Clinical Center - Building 10

    Bethesda, Maryland

     

  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

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