Research and Resources for Collaboration
Network with Adult Sickle Cell Providers
Patient Care Resources
Education on Clinical Management and Research Opportunities
The Sickle Cell Adult Provider Network (SCAPN)
The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease. This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.
INSIGHTS Study on Sickle Cell Disease and Leg Ulcers at NIH.
The objective of the study is to: (1) utilize advanced next generation sequencing technologies to characterize the skin microbiome in sickle cell disease (SCD) patients living with and without leg ulcers and (2) employ social science approaches to identify psychosocial and physical environmental indicators that influence leg ulcer formation and SCD. This study will consist of two to three visits to the NIH in Bethesda, Maryland and travel and lodging will be provided. Additionally, individuals with leg ulcers will also undergo wound care treatment during each visit. The information gleaned from this study will help guide treatment and interventions for those living with this SCD complication. All study participants will receive compensation for full participation in the study.
Eligibility: Individuals ≥ 18 years of age who have sickle cell disease or another red cell disorder and who may or may not have an active leg ulcer. Individuals with multiple leg ulcers are also encouraged to participate in the study.
For more information on the
please feel free to contact us at:
301-451-3997 or SCDLegUlcerStudy@mail.nih.gov
Keisha Findley, Ph.D.
Caterina Minniti, M.D.
Sickle Cell Vascular Disease Section
National Heart, Lung, and Blood Institute
Building 10CRC Room 5-5140
Bethesda MD 20892
American Society for Apheresis (ASFA)
ASFA 2015 Annual Meeting: Infectious Disease & Apheresis
The 36th ASFA Annual Meeting will be held in San Antonio, TX from May 6 - 9, 2015.
Sickle Cell Consensus Conference will take place on Tuesday, May 5, as a pre-conference activity
Afpheresis Review Session will take place on Wednesday, May 6, as a pre-conference activity
Pre-registration with ASFA and Additional Registration Fees Required
Grand Hyatt San Antonio
600 E Market Street
San Antonio, TX 78205
Please go to www.apheresis.org for additional information.
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Next SCAPN Meeting
Foundation for Sickle Cell Disease Research Meeting (FSCDR)
April 10 - 13, 2015 - Hollywood, Florida
Actual meeting date TBD - This will not be a Symposium Meeting
Welcome to SCAPN.net
We are excited to launch our new website! A big thank you to the Doris Duke Foundation. We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults! We welcome you to visit the site and become interactive with us.
- Feedback on the web site
- Joining SCAPN
- Meeting Details
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Click here to stay informed of all the upcoming news and events as SCAPN forms our 501(c)3.