Research and Resources for Collaboration
Network with Adult Sickle Cell Providers
Patient Care Resources
Education on Clinical Management and Research Opportunities
The Sickle Cell Adult Provider Network (SCAPN)
The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease. This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.
INSIGHTS Study on Sickle Cell Disease and Leg Ulcers at NIH.
The objective of the study is to: (1) utilize advanced next generation sequencing technologies to characterize the skin microbiome in sickle cell disease (SCD) patients living with and without leg ulcers and (2) employ social science approaches to identify psychosocial and physical environmental indicators that influence leg ulcer formation and SCD. This study will consist of two to three visits to the NIH in Bethesda, Maryland and travel and lodging will be provided. Additionally, individuals with leg ulcers will also undergo wound care treatment during each visit. The information gleaned from this study will help guide treatment and interventions for those living with this SCD complication. All study participants will receive compensation for full participation in the study.
Eligibility: Individuals ≥ 18 years of age who have sickle cell disease or another red cell disorder and who may or may not have an active leg ulcer. Individuals with multiple leg ulcers are also encouraged to participate in the study.
For more information on the
please feel free to contact us at:
301-451-3997 or SCDLegUlcerStudy@mail.nih.gov
Keisha Findley, Ph.D.
Caterina Minniti, M.D.
Sickle Cell Vascular Disease Section
National Heart, Lung, and Blood Institute
Building 10CRC Room 5-5140
Bethesda MD 20892
We would like to invite you to join us for a community forum to discuss the Sickle Cell Disease Newborn Screening Program. During this session, you
will learn HRSA’s vision for the direction of the program and have the opportunity to provide your feedback. We will host the same session on two occasions; you are
welcome to attend either or both sessions; however, the presentation will be the same. Below and attached are additional details.
Webinar InformationDate: Wednesday, July 30 and Wednesday, August 6, 2014
Time: 3:00-4:30pm (ET)
Location: Online Webinar: [log in information available when registering]
Please see the attached flyers for further details and a link to register for the webinar. We ask that you share this information with the relevant members of your team
and interested individuals in your network. We would like to have as many people join and provide feedback as possible. If you have any questions, please contact
me at firstname.lastname@example.org.
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Thursday, September 18, 2014
8:30a - 2:00p
Natcher Conference Center (NIH Campus)
Annual Sickle Cell Disease Clinical
September 17 - 18, 2014
Bethesda, MD 20892
Welcome to SCAPN.net
We are excited to launch our new website! A big thank you to the Doris Duke Foundation. We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults! We welcome you to visit the site and become interactive with us.
- Feedback on the web site
- Joining SCAPN
- Meeting Details
JOIN OUR EMAIL LIST
Click here to stay informed of all the upcoming news and events as SCAPN forms our 501(c)3.