• Research and Resources for Collaboration

  • Network with Adult Sickle Cell Providers

  • Patient Care Resources

  • Education on Clinical Management and Research Opportunities

The Sickle Cell Adult Provider Network (SCAPN)

The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease.  This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.


CDC is pleased to invite providers, patients, and organization representatives to provide input on Draft CDC Opioid Prescribing Guidelines for Chronic Pain during a webinar presentation and discussion. 
Wednesday September 16, 2015
2:30-4:00 PM EDT
Engaging Providers, Patients, and Organizations on 
Draft CDC Opioid Prescribing Guidelines for Chronic Pain
Please share this invitation to participate with providers, patients, or organization representatives that you feel may want to provide comment. The recommendations are intended for the prescribing of opioid pain relievers for patients 18 and older with chronic pain, in primary care settings, outside end-of-life care. CDC wants to present the draft recommendations that have been informed by the scientific evidence and developed through discussion with experts. CDC is seeking input so that we are able to improve the content, clarity, and utility of the draft recommendations.
About the Webinar
During the webinar, CDC experts will walk through the guideline development process and the 12 top-line prescribing recommendations. CDC will pause for webinar participants to provide comments for each recommendation. Participants can submit comments 1) orally over the phone, 2) in writing in real-time via the webinar portal, or 3) via email immediately after the webinar and up through 5:00 PM EDT on September 17, 2015.
The email address will be provided at the time of the webinar. . CDC will summarize public comments and provide responses to comments in a document that will be posted on the NCIPC Peer Review Agenda website (http://www.cdc.gov/in-jury/fundedprograms/peerReview.html) in October 2015. The written summary will be anonymous and will not include names of individuals or organizations submitting comments.  
How to Register and Join the Webinar
To register and learn more about this event, please visit: https://events-na12.adobecon-nect.com/content/connect/c1/1278955669/en/events/catalog.html. Please find the link to the CDC Opioid Prescribing Guidelines Public Webinar, and click “register.” Once registered, an email will be sent to you containing a link to the webinar for use on the day of the presentation. A conference line will be displayed once the webinar begins. 
Given the limited lines available via the webinar platform, participants must register in advance in order to join. Organizations that anticipate having multiple participants join the webinar are encouraged to use a single line and computer, if feasible, to ensure broad participation in the webinar. 
Thank you for engaging with us in this very important public health work. 



September is National Sickle Cell Disease Awareness Month.  Join a walk, make a donation to a community program or comprehensive center program in your respective area.


1st Annual Sickle Cell Disease Symposium: A Comprehensive Approach to Managing Sickle Cell Disease will be held in Charlotte, NC on October 24, 2015.

Time: 8:00a - 3:30p EST

Place: Carolinas Healthcare System - North East - Hamrick Theater - 920 Church Street North - Concord, NC 28025



Overview of Sickle Cell Disease: Myths and Truths - James Eckman, MD

Common Therapies for Sickle Cell Disease - Julie Kanter, MD

Pulmonary Complications of Sickle Cell Disease - Johnson Haynes, MD

ED Management of Sickle Cell Disease - Paula Tanabe, PhD

Developing Comprehensive Care Plans for Sickle Cell Disease - Ify Osunkwo, MD

Acute & Chronic Pain Management - Wally Smith, MD

Psychosocial Challenges in Managing Young Adults with Sickle Cell Disease - Nirmish Ramesh Shah, MD

An interactive Patent Panel will conclude the symposium

To register go to;  www.charlotteahec.org or contact Amanda  Rogers at (704) 512-6038 for more information.

The Carolinas Healthcare System/Charlotte AHEC designates this Live Activity for a maximum of 6.0 AMA PRA Category 1 Credit(s)™.

Physicians should claim only the credit commensurent with the extend of their participation in the activity.

















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  • Next SCAPN Meeting

    Sickle Cell Disease Association of America (SCDAA)

    SCDAA 43rd Annual Convention

    September 23, 2015  - 3:00p

    Hilton Inner Harbor Hotel

    Baltimore, MD

    Room location TBD








  • Welcome to SCAPN.net

    We are excited to launch our new website!  A big thank you to the Doris Duke Foundation.  We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults!  We welcome you to visit the site and become interactive with us.

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    Click here to stay informed of all the upcoming news and events as SCAPN forms our 501(c)3.