Research and Resources for Collaboration
Network with Adult Sickle Cell Providers
Patient Care Resources
Education on Clinical Management and Research Opportunities
The Sickle Cell Adult Provider Network (SCAPN)
The Sickle Cell Adult Provider Network (SCAPN) was established in 2002 with a mission to establish and support an interactive network for healthcare providers and investigators who serve adults with sickle cell disease. This was the first, and remains the only, national organization that offers a home for healthcare professionals from multiple disciplines who focus on adult-oriented research, clinical care, provider education/training, mentorship and advocacy in sickle cell disease.
PHENX MEASURES FOR SICKLE CELL DISEASE RESEARCH
The PhenX (consensus measures for Phenotypes and eXposures) Toolkit (www.phenxtoolkit.org) provides investigators with access to well established, low burden, standard measures to incorporate into new or existing biomedical studies involving human subjects. The goal of the Toolkit is to encourage use of common measures to help researchers effectively collaborate and share data.
The PhenX Sickle Cell Disease Research and Scientific Panel (SRSP) is requesting feedback on measures being condisered for inclusion in the Sickle Cell Disease (SCD) Core Collection in the PhenX Toolkit.
Co-Chairs Dr. James Eckman or Dr. Kathryn Hassell thank you for your feedback.
September is National Sickle Cell Disease Awareness Month. Join a walk, make a donation to a community program or comprehensive center program in your respective area.
1st Annual Sickle Cell Disease Symposium: A Comprehensive Approach to Managing Sickle Cell Disease will be held in Charlotte, NC on October 24, 2015.
Time: 8:00a - 3:30p EST
Place: Carolinas Healthcare System - North East - Hamrick Theater - 920 Church Street North - Concord, NC 28025
Overview of Sickle Cell Disease: Myths and Truths - James Eckman, MD
Common Therapies for Sickle Cell Disease - Julie Kanter, MD
Pulmonary Complications of Sickle Cell Disease - Johnson Haynes, MD
ED Management of Sickle Cell Disease - Paula Tanabe, PhD
Developing Comprehensive Care Plans for Sickle Cell Disease - Ify Osunkwo, MD
Acute & Chronic Pain Management - Wally Smith, MD
Psychosocial Challenges in Managing Young Adults with Sickle Cell Disease - Nirmish Ramesh Shah, MD
An interactive Patent Panel will conclude the symposium
To register go to; www.charlotteahec.org or contact Amanda Rogers at (704) 512-6038 for more information.
The Carolinas Healthcare System/Charlotte AHEC designates this Live Activity for a maximum of 6.0 AMA PRA Category 1 Credit(s)™.
Physicians should claim only the credit commensurent with the extend of their participation in the activity.
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Next SCAPN Meeting
Sickle Cell Disease Association of America (SCDAA)
SCDAA 43rd Annual Convention
September 23, 2015 - 3:00p
Hilton Inner Harbor Hotel
Room location TBD
Welcome to SCAPN.net
We are excited to launch our new website! A big thank you to the Doris Duke Foundation. We are currently working to create a 501(c)3 organization that facilitates Research, Networking and Resources for Health Care Providers of Sickle Cell Adults! We welcome you to visit the site and become interactive with us.
- Feedback on the web site
- Joining SCAPN
- Meeting Details
JOIN OUR EMAIL LIST
Click here to stay informed of all the upcoming news and events as SCAPN forms our 501(c)3.